In 2012, we were blessed with the most beautiful granddaughter in the world and as a result, we diligently are spreading arthrogryposis awareness. Abby was born with multiple congenital joint contractures throughout her tiny body. Doctors do not know exactly what causes Arthrogryposis, and even fewer physicians know how to treat a child with this issue. This lack of muscular development and growth is very difficult for families. More needs to be done to provide new AMC parents with guidance and medical opportunities to help their child grow to be self-sufficient. Shriners Children Hospital in Greenville, South Carolina has a wonderful department of doctors and therapists who recognize the symptoms…
Today is #GivingTuesday. Facebook and the Gates Foundations (yes, Bill Gates) have teamed up and will match ALL funds raised by Arthrogryposis Multiplex Congenital Support – up to $55,000 – for donations made through Facebook TODAY! We know the Christmas season is financially tight, but even a donation of $5 is very much appreciated. Smokin J’s Barbeque has committed to donating part of our 2017-2018 winnings to this incredible charity. If you can – please hop over to our Facebook page and donate today! Your donation will be DOUBLE what you donate! Thank you.
Arthrogryposis Mini-Meet Up
Smokin J’s Barbeque had the pleasure of cooking up a couple of pork butts for our Arthrogryposis family. This “Mini-Meet Up” usually occurs twice a year, once in the summer and once in the fall, for those affected by Arthrogryposis Multiplex Congenita. Attendees use this gathering to keep in touch with each other, let the kids play together and discuss topics surrounding this underfunded birth defect. Most of the discussion surrounds the annual AMC conference, this year to be held just outside Las Vegas, Nevada. AMC members, from around the world will gather at this yearly event to attend workshops, discussions and…